Miracle Baby

THE LATEST NEWS!

Miracle Baby

Hi Everyone, I know it has been a while since the last post but, as you can see: something very unexpected literally popped up in our lives. The week I was anticipating scheduling my next MRI--I realized that the new weight gain around the middle looked suspiciously baby belly like. It was absolutely out of my consciousness that I could possibly be pregnant however as I was tested extensively in the hospital. Apparently, it is routine to test a woman for pregnancy before each MRI (at least that is what I was told) and it was brought up several times that they were testing me--so, I made peace with the reality that I was definitely NOT pregnant while in the hospital. Now, after surgery~I fell and injured my tailbone and I absolutely assumed it was not safe to even think of getting pregnant for years after a diagnosis like mine--so, of course I could not be pregnant! 2 ept tests and then off to Planned Parenthood and Birthright (just to be sure)--4 positives later and a visit to dear Dr. Carol Phillips and we heard a heart beat--it is true~in the midst of all of this~we have a baby! Of course, immediately my mind went to the anesthesia, the cat scan, pet scan, MRI's, and drugs I had to take around this surgery-- it was so scary to imagine the baby dealing with such challenges. Fortunately, I believe this little one was magically protected with all the love coming to me/us during this time and the sonogram last week showed us the baby is doing well!!!!!!!! Thank You All for your continuing prayers and Love~we created a Miracle!!!!!!!!!!!

May Pics To Share

~ Hi All ~

Happy Memorial Day!

We hope everyone is well, thanks SO much for keeping us in your daily prayers. 

 Your love & support is why everything continues to progress in such a positive way.....

Here are some pics from May to share with you, 

we are building back towards going home as soon as we confirm that we have eliminated the airborne mold form our cabin with some follow-up testing

 Mother's Day

Crabs at Cantlers 

Davidsonville Garden

Pilot & Jetta visiting us at the cabin...:-)

Beautiful weather at Larry & Boo's

Tommy Emmanuel Show at Rams Head

Thanks Steve!!

Annapolis Musical Theater Company

Talent Showcase at Maryland Hall

(with Pilot and Director Priscilla Smith)

Beautiful basket of gifted garden goodies from John & Priscilla

Memorial Day Feast!

Love to you all, and so much gratitude and blessings from us!

Costa Rica Drawing at Ridgely Retreat

5.3.2012

(Costa Rica Drawing - "and the winner is.....")

Metropolitan Fundraiser

4.29.2012

(Metropolitan Fundraiser)

(Thanks for a great event!!)

(Nancy, Damian & local artists)

New Fundraising Videos

(Fundraising Concert at the All's Music Room)

(Ridgely Retreat Silent Auction - get the details)

4.21.2012

4.21.2012

We got the call this week from the Burzynski Clinic and not surprising~the results were seen the same way.  I was SOOOOOOOOOOO nervous when Sam was on the phone that somehow we would hear that the initial clean reading had been off.  It was another wave of relief when I realized that all was still well in the brain! 

I am writing to share my most recent update:  Currently, I am unable to move forward with the antineoplaston treatment with Burzynski.  In order to even be admitted to the clinical trial~there has to be a visible tumor to treat. I am feeling incredibly Blessed to have this time to continue to self-heal and work with other protocols in order to manage this situation. I hope that I can continue to heal and never will need any antineoplaston treatment~although, Burzynski would be my absolute first choice should something shift.  I realize I am dealing with a very aggressive type of tumor and  it gives me great relief to know that  this fund is here providing security as I go about my days and live life.  Thank You. Thank You. Thank You.  May each of your prayers and kind thoughts be returned to you and Bless You Endlessly.  My Love goes out to You...

PET Scan news

Thank You All for your prayers and Love~I truly feel held in the arms of Grace

Received the miraculous news that the PET Scan was clear!!!!!!!!!!! 

We just mailed the scan on to Burzynski today~

So next week we will have the definite update from the clinic.........

Jessica

Day before PET scan

Healing Jessica Story

We can feel your support

Everyday brings more people offering their support to us. I am blown away daily by how much love is building around what we are going through right now..... I want you to know that no matter how big or small a role you have in this we are all a part of the healing journey together. Thank you all so much, Sam & Jess

Preparing for Surgery

February 22, 2012

Hi Everyone,

This is a message directly from Jessica. 

Sam has to type for me because I am lying in a hospital bed at Johns Hopkins Medical Center preparing for my operation this afternoon starting around 12-1pm. The procedure will last around 4 hours.

Two weeks of intense non-stop cluster headaches landed me in the ER at AAMC where we discovered that I have a large tumor in my right frontal lobe.

I feel blessed to have a world renowned brain surgeon, Dr. Jon Weingart, helping me go through this experience. It's amazing that I live so close to the #1 neurosurgical facility in the county.

I'm emailing you this because I would be so grateful to have your healing prayers and positive thoughts in my corner as I go through this unique journey and recovery.

Thank you, thank you, thank you, your love and support means the world to me.

Love,

Jessica

Post-Op Update

February 24, 2012

Hello All,

Today showed great progress once again as Jessica was able to get up and go down to Physical Therapy where she did leg exercises, took a walk, went up and down a flight of 12 stairs & then rode on a resistance machine for about 12 minutes. She has been cleared to eat and has had broth, avocado & some probiotics. The final piece of news for tonight.....

We are going home TOMORROW!!

Pray for a good nights rest for both of us and that every day moving forward will continue to build towards full recovery and her return to optimum health.....

May all of your beautiful prayers come back to bless you as powerfully as they have been blessing us through this experience....

All our love,

Sam & Jess